Zoe Cadence Walenius and the Walenius Family are sponsored by "RHTYHM OF LIFE," a project of the Noblemen.  For information on how you can help the family please visit the Rhythm of Life website.
My name is Zoë Cadence Walenius.  I turned 5 years old on February 9, 2010.  I was born with an extremely rare auto-immune disease, called OMS (Opsoclonus-Myoclonus Syndrome), that was caused by neuroblastoma cancer.  My cancer is in remission now, but I am still undergoing treatments for the OMS.  I had rituximab chemotherapy done in Illinois.  My doctor there is studying my OMS to help find a cure and help other kids like me.  The Rituxan helped me a lot.

My OMS is very agressive and I will be doing a new chemotherapy protocol every week for at least six months. I will also be doing Gammagard infusions and IV steroids inpatient at CHKD.

I have a big brother, Noah, and a big sister, Payton.  They are my best friends. I also have a little brother named Cooper.
I love to play dress up, watch Noggin and Playhouse Disney, and sing and dance.

I recently had my feeding tube removed and a new central line placed for me to get my chemotherapy.

My eye may look a little funny because my cancer was attached to a nerve.  When the doctor took it out the nerve was damaged and now it doesn't work very good.

My mommy and daddy are very sad about all that is going on.   But all I have to do is flash my beautiful grin and that usually makes them feel better.  Maybe you could pray for our family.  Pray that God will provide for our needs and of course for me to get all better.  We know that God has carried us through this season so far and your prayers are being answered.  Thank you so much!

MANY THANKS TO THE FOLLOWING GROUPS THAT HAVE BEEN A HUGE BLESSING TO OUR FAMILY!!
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www.thenoblemen.org
The Noblemen are our official sponsors for the
RHYTHM OF LIFE
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FBC Norfolk - Chesapeake Fellowship is our church family. Their love, support & encouragement has given us a lifeline to strengthen our trust in the God that heals. We believe that God is in control & has our precious Zoe in His loving hands.
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2006 Family Photos by Marcus Holman Photography
www.marcusphoto.net
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New 2010 Family Photo by David Willis Photography
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God didn't promise days without pain, laughter without sorrow, sun without rain, but He did promise strength for the day, comfort for the tears, and light for the way.
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Don't be afraid that your life will end.  Be afraid that it will never begin.
As we grow up, we learn that even the one person that wasn't supposed to ever let us down probably will.  You will have your heart broken probably more than once and it's harder every time.  You'll break hearts too, so remember how it felt when yours was broken.  You'll fight with your best friend.  You'll blame a new love for things an old one did.  You'll cry because time is passing too fast, and you'll eventually lose someone you love.  So take too many pictures, laugh too much, and love like you've never been hurt because every sixty seconds you spend upset is a minute of happiness you'll never get back.













Neuroblastoma, OMS, GERD, Horner's Syndrome, IgA Deficiency, Neurological Autonomic Dysfunction, Harlequin Syndrome

CURRENT PRAYER NEEDS & PRAISES
  • Active OMS symptoms
  • Passing out, Fatigue
  • Dangerous low blood pressures
  • Head and abdominal pain
  • Insurance issues
  • Harlequin Syndrome Symptoms
Join TEAM RHYTHM OF LIFE
or become a sponsor
www.runningforzoe.com
Contact Info:  Melodie Walenius
runningforzoe@gmail.com  757-544-7034 ~ 408 Kings Gate ~ Chesapeake, VA  23453