My name is Zoë Cadence Walenius. I turned 5 years old on February 9, 2010. I was born with an extremely rare auto-immune disease, called OMS (Opsoclonus-Myoclonus Syndrome), that was caused by neuroblastoma cancer. My cancer is in remission now, but I am still undergoing treatments for the OMS. I had rituximab chemotherapy done in Illinois. My doctor there is studying my OMS to help find a cure and help other kids like me. The Rituxan helped me a lot.
My OMS is very agressive and I will be doing a new chemotherapy protocol every week for at least six months. I will also be doing Gammagard infusions and IV steroids inpatient at CHKD.
I have a big brother, Noah, and a big sister, Payton. They are my best friends. I also have a little brother named Cooper.
I love to play dress up, watch Noggin and Playhouse Disney, and sing and dance.
I recently had my feeding tube removed and a new central line placed for me to get my chemotherapy.
My eye may look a little funny because my cancer was attached to a nerve. When the doctor took it out the nerve was damaged and now it doesn't work very good.
My mommy and daddy are very sad about all that is going on. But all I have to do is flash my beautiful grin and that usually makes them feel better. Maybe you could pray for our family. Pray that God will provide for our needs and of course for me to get all better. We know that God has carried us through this season so far and your prayers are being answered. Thank you so much!